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This job was posted by https://illinoisjoblink.illinois.gov : For more information, please see: https://illinoisjoblink.illinois.gov/jobs/11863084 Department

BSD PED - Clinical Trials Office: Developmental and Behavioral Pediatrics

About the Department

The Department of Pediatrics at the University of Chicago is a dynamic and stimulating place to work. We strive for the highest level of complex care for children from diagnosis and treatment; provide outstanding education and training for students, postgraduate scholars, and physicians; and nurture the research of Department scholars who seek to elucidate the causes of pediatric disease and identify promising new therapies. In addition to our provision of clinical care at UChicago Medicine (UCM) Comer Children\'s Hospital and at our regional sites, we are currently expanding our clinical care across Northern Illinois and Northwestern Indiana. In collaboration with our partners in the Chicagoland Children\'s Health Alliance (CCHA; Advocate Children\'s Hospital, and NorthShore University Health System). CCHA has responsibility for the care of almost 1 million children. The Department has 6 ambulatory sites and 3 inpatient sites of care across the region with the goal of providing care \'close to home\' whenever feasible (https://pediatrics.uchicago.edu/). Our mission is to improve the health of every child entrusted to us, in an inclusive environment that is committed to family-centered care, clinical excellence, impactful scholarship, effective disease prevention, and advocacy for the appropriate care of every child. We are especially committed to the children on the South Side of Chicago and to altering the inequities in healthcare. The Department of Pediatrics has approximately 185 physicians, physician-scientists, and scientists in 15 sections that cover the range of pediatric care. Our education program serves the students of the College, the Pritzker School of Medicine (PSOM), 70 categorical pediatric residents, 6 child neurology residents, 58 fellows, and numerous graduate students and post-doctoral fellows. The Department has a staff of 220 advanced practice providers, administrators, research administrators, clinical research associates, and laboratory staff. The Department has an expanding portfolio of Federal, foundational, and Philanthropic awards, and is committed to doubling its research base in the next three years.

The Pediatric Clinical Trials Office (Peds CTO) is an existing centralized support office that provides services and high level guidance to individuals (faculty, investigators, research staff, and clinic coordinators from the University and Hospital) involved in human subjects research. The Peds CTO is responsible for establishing standards, operating procedures, policies and practices, implementing educational and training programs, developing communication tools, and managing the administrative functions that impact individuals involved in clinical research.

The Section of Developmental and Behavioral Pediatrics strives to become a Center of Excellence in the complex diagnosis and management for diverse disabilities with origin in childhood, which include children with motor, communicative, sensory, developmental, genetic, neurological, learning, behavior, and feeding disorders. The Section plays important roles in supporting children who are survivors of neonatal intensive care and pediatric intensive care critical illness. As coordinated family-centered population health care is the transforming principle for future health financing initiatives, the Section is uniquely positioned to address care coordination, management pathways, and collaboration with community providers to advance both the quality and value of efforts to improve outcomes for vulnerable child disability populations with a spectrum of developmental and behavioral disorders.

Our department follows a hyb id work structure that fosters productivity, collaboration, and employee well-being. Working from the office is encouraged for tasks that require a high degree of collaboration.

Job Summary

We are seeking a Part-Time Clinical Research - Family Member Liaison to support the research of a faculty member, Dr. Sarah Sobotka, as a critical team member to her growing research programs devoted to children with medical complexity and medical technology dependency including ventilators. This Family Liaison would bring expertise from his/her experience of caring for children with complex disabilities, including ventilator assistance through their personal life as a parent. This position will provide core research coordination support by recruiting, enrolling and supporting families in research studies. In particular, the Family Member Liaison will be a critical member of the team supporting an ongoing research program entitled, Disparities in Home Nursing for Children with Invasive Mechanical Ventilation: Piloting aParent-to-ParentIntervention in Chicago. Work on this project will include enrolling and discussing consent with parents in this study and serving as a Parent Coach. The Family Member Liaison will draw upon lived experience as a parent of a child with ventilator dependence, including experience in managing, staffing, and recruiting for home health nursing teams. The Family Member Liaison will also incorporate strategies for recr